Happy New Years Eve!!
Today was a whole lot of nothing. I slept fairly well, and didn't even get up until 8:45 a.m.
Ate breakfast, checked email, laid down for 30 minutes (?) /took a quick shower, and went to bed for another two hours. Forced myself to get up at noon. They I Skyped for about 15 minutes with Kylie, Alexa and Pete. It was nice to see them!!
Watched a little t.v. and took a third nap. Just got home from Sat night pizza and I think I've got to go to bed already. I'm just beat.
Until tomorrow.... Don't say up all night and be safe everyone What can we do for Jesus in 2012???
Saturday, December 31, 2011
Friday, December 30, 2011
December 30, 2011
I'm tired. I'm weak. I thank Jesus I didn't have to go anywhere today. I think I slept more today than I was awake. So nothing exciting to report, but nothing bad either.
Got up 8ish and had to take a nap by 10. Up at Noon and back to bed by 3, but slept til 6. Ready to head to bed.
Thank you for your continued prayers and encouragement. I need everyone of them.
Until tomorrow....... another day with "nothing to do" (yeah!) although I have lots of bookkeeping/budgeting (for this years tax return) I would like to take care of if I have enough energy. Here's hoping!
Good Night!
Got up 8ish and had to take a nap by 10. Up at Noon and back to bed by 3, but slept til 6. Ready to head to bed.
Thank you for your continued prayers and encouragement. I need everyone of them.
Until tomorrow....... another day with "nothing to do" (yeah!) although I have lots of bookkeeping/budgeting (for this years tax return) I would like to take care of if I have enough energy. Here's hoping!
Good Night!
Thursday, December 29, 2011
December 29, 2011
What a day!
Got picked up at 7:30 after a fairly decent night's sleep. Had my labs drawn at 8:40 a.m. and then went to breakfast. Had Speech therapy at 10:00 a.m. and a wonderful massage at 11:00. Since I now had almost 2 hours to kill before my Dr's apt to see if I could start chemo today or not, I took a 45 minute cat nap in the tv room. Didn't feel ill or anything, just wanted my eyes closed so I'd have energy for the rest of my day.
After my cat nap I had lunch, and then went to my Team apts. where I found out my blood platelets rose a bit, but not enough for chemo through the port. But since this cancer is growing, he wants to start me on something! So I started this evening after getting home on Cytoxan, a chemo pill for the next 14 days. Since I have so many other reactions to the meds etc he does not want me to travel until he sees how I react to the chemo. So I'm here at least until 1/3.
And I have to return here on 1/12. Already have my flight scheduled.
They will check my labs on 1/3 and decide when I get to go home. Then I'll have labs at home on 1/10 before returning on 1/12.
When I was 'almost' done for the day, my friend from Vernal, UT; Cathy Meek, who now lives in Tuscon, AZ; whom I have not seen in 15 years was able to join me for coffee and a sandwich because she was in town. It was so nice to see her!!!
Here is where I claim TMI, stop reading if you chose. Once we sat down in the cafe for her lunch. (I'd already eaten) I started to feel sick, and lost my lunch. As soon as my legs steadied (or so I thought) I went and picked my RX's so I could go home. But I became too unsteady on my feet and had to stick around and have the staff check me out to go home. They took my vitals and ordered another chest x-ray because I was short of breath, and checked my blood sugar. Had to wait a long time for the x-ray and even longer for the radiologist to not call with a report. The Dr. decided the x-ray was ok and didn't want me to wait any longer. I'd been there for over 2 hours. He felt it was safe to send me to Uncle Hal's.
Once I got to Hal's, I took my anti-nausea meds and at a small salad so I could take my first chemo pill. Although I had the RX for the chemo, I didn't get sick because of it; at least not yet.
I'm headed to bed within the next few minutes. I'm beat. But I don't have to be back there before 1/3 unless I have any complications between now and then. I can just rest, rest, rest and visit.
God Bless....Until later...
Got picked up at 7:30 after a fairly decent night's sleep. Had my labs drawn at 8:40 a.m. and then went to breakfast. Had Speech therapy at 10:00 a.m. and a wonderful massage at 11:00. Since I now had almost 2 hours to kill before my Dr's apt to see if I could start chemo today or not, I took a 45 minute cat nap in the tv room. Didn't feel ill or anything, just wanted my eyes closed so I'd have energy for the rest of my day.
After my cat nap I had lunch, and then went to my Team apts. where I found out my blood platelets rose a bit, but not enough for chemo through the port. But since this cancer is growing, he wants to start me on something! So I started this evening after getting home on Cytoxan, a chemo pill for the next 14 days. Since I have so many other reactions to the meds etc he does not want me to travel until he sees how I react to the chemo. So I'm here at least until 1/3.
And I have to return here on 1/12. Already have my flight scheduled.
They will check my labs on 1/3 and decide when I get to go home. Then I'll have labs at home on 1/10 before returning on 1/12.
When I was 'almost' done for the day, my friend from Vernal, UT; Cathy Meek, who now lives in Tuscon, AZ; whom I have not seen in 15 years was able to join me for coffee and a sandwich because she was in town. It was so nice to see her!!!
Here is where I claim TMI, stop reading if you chose. Once we sat down in the cafe for her lunch. (I'd already eaten) I started to feel sick, and lost my lunch. As soon as my legs steadied (or so I thought) I went and picked my RX's so I could go home. But I became too unsteady on my feet and had to stick around and have the staff check me out to go home. They took my vitals and ordered another chest x-ray because I was short of breath, and checked my blood sugar. Had to wait a long time for the x-ray and even longer for the radiologist to not call with a report. The Dr. decided the x-ray was ok and didn't want me to wait any longer. I'd been there for over 2 hours. He felt it was safe to send me to Uncle Hal's.
Once I got to Hal's, I took my anti-nausea meds and at a small salad so I could take my first chemo pill. Although I had the RX for the chemo, I didn't get sick because of it; at least not yet.
I'm headed to bed within the next few minutes. I'm beat. But I don't have to be back there before 1/3 unless I have any complications between now and then. I can just rest, rest, rest and visit.
God Bless....Until later...
Wednesday, December 28, 2011
December 28, 2011 - Evening
Hello again! I feel GREAT!
I had my chemo port placed this morning at 8:30 and was released to Uncle Hal's 'custody' before 11:00 a.m. We had lunch then had to hang out at the facility for all my follow up apts with the Dr's.
Unfortunately, my blood platelets count is too low and they won't promise chemo tomorrow. Soooo, my day starts tomorrow at 8:20 with a lab draw, then speech therapy (just in case), then a massage!!! Woo Hoo!
Then after lunch I'll meet with the oncologist to see if we can do chemo tomorrow or not. If not.... I probably won't make it home before the middle of next week due to New Years etc.
Until tomorrow....God Bless
I had my chemo port placed this morning at 8:30 and was released to Uncle Hal's 'custody' before 11:00 a.m. We had lunch then had to hang out at the facility for all my follow up apts with the Dr's.
Unfortunately, my blood platelets count is too low and they won't promise chemo tomorrow. Soooo, my day starts tomorrow at 8:20 with a lab draw, then speech therapy (just in case), then a massage!!! Woo Hoo!
Then after lunch I'll meet with the oncologist to see if we can do chemo tomorrow or not. If not.... I probably won't make it home before the middle of next week due to New Years etc.
Until tomorrow....God Bless
December 28, 2011 - a.m.
Good Morning All. Sorry I didn't post yesterday. It was a L-O-N-G day.
I was up at 4:30 to get ready for my flight to Phoenix. Folks and kids dropped me at the airport at 6:30. Flight was good, no weather or turbulence etc. Picked up at the airport and came straight to the facility for my lab draw. Had lunch with Patty & Peggy a mother daughter unit that have been here since JULY! Patty has anal cancer and her radiation is complete today!! She gets to ring the bell!! Unfortunately she has to come back again in three weeks. But she's so excited to go home to Alaska.
I laid down for a 30 minute cat nap in the tv room before I had my appointment with my team of Dr's. Everything is good to go. Today I'll have my chemo port placed...lol..I almost said 'installed'. Uncle Hal is my caretaker for today. I'm so blessed to have family here with me. Thank you Jesus!
I slept ok last night, actually rather well, despite a few very odd dreams. Please pray for my dry nose. Not sure if it's meds or climate.
Not sure if I'll be up to posting tonight. If nothing else, I'll try to have Uncle Hal or Andy put something on my facebook wall.
Until later....Thanks for your prayers!!!
I was up at 4:30 to get ready for my flight to Phoenix. Folks and kids dropped me at the airport at 6:30. Flight was good, no weather or turbulence etc. Picked up at the airport and came straight to the facility for my lab draw. Had lunch with Patty & Peggy a mother daughter unit that have been here since JULY! Patty has anal cancer and her radiation is complete today!! She gets to ring the bell!! Unfortunately she has to come back again in three weeks. But she's so excited to go home to Alaska.
I laid down for a 30 minute cat nap in the tv room before I had my appointment with my team of Dr's. Everything is good to go. Today I'll have my chemo port placed...lol..I almost said 'installed'. Uncle Hal is my caretaker for today. I'm so blessed to have family here with me. Thank you Jesus!
I slept ok last night, actually rather well, despite a few very odd dreams. Please pray for my dry nose. Not sure if it's meds or climate.
Not sure if I'll be up to posting tonight. If nothing else, I'll try to have Uncle Hal or Andy put something on my facebook wall.
Until later....Thanks for your prayers!!!
Monday, December 26, 2011
December 26, 2011 - Good Night
Hi all! I really need to head to bed. Almost packed. Gotta get up too early though.
My flight is at 8:00 a.m. so I won't be posting before I leave. I don't arrive in Phoenix until 10:00 a.m. where they will pick me up and bring me to the facility. I'll have labs drawn and see my Oncologist, Dr. Nixon and then we'll plan the week. My rash is fading, so I think we're on schedule for the Chemo Port to be placed on Wednesday.
I'll be staying at my Uncle Hal's for my Chemo Treatments. God has blessed me with family to be with me during this trial. Really wish I'd made it to AZ prior to this. Maybe when this is all over we'll take the kids to the Grand Canyon. Hailey's old enough to appreciate it now.
The real trials begin tomorrow.....
My flight is at 8:00 a.m. so I won't be posting before I leave. I don't arrive in Phoenix until 10:00 a.m. where they will pick me up and bring me to the facility. I'll have labs drawn and see my Oncologist, Dr. Nixon and then we'll plan the week. My rash is fading, so I think we're on schedule for the Chemo Port to be placed on Wednesday.
I'll be staying at my Uncle Hal's for my Chemo Treatments. God has blessed me with family to be with me during this trial. Really wish I'd made it to AZ prior to this. Maybe when this is all over we'll take the kids to the Grand Canyon. Hailey's old enough to appreciate it now.
The real trials begin tomorrow.....
December 26, 2011 - URGENT Prayer Request.
Hello! Sad to report I didn't sleep the best last night, although I did get over 8 hours of rest. I really over did it yesterday. I missed a pain med too, and paid for it overnight, gotta quit doing that. More good news the rash is slowly going away, keep the prayers coming.
Yesterday my wonderful eldest son, Troy, and my Dad installed a beautiful handrail on my steep stairs into my basement. Troy did a fabulous job of staining it and assisting Papa in the installation. He's been learning all sorts of honey do type projects helping Dad not be bored. They fixed my coffee table that had a broken leg & re-set the dishwasher that had come disconnected from the counter top, (people can be so rough when they do their chores.) Things that Howard just hasn't had time to get to. We are so blessed!
Mom, Dad, Trevor & I returned an unnecessary bracket to Home Depot. Trevor wanted to exchange his old DS and games for some used XBox games & a Controller since he chose a refurbished machine for his b-day/Christmas gift. I think he's pleased with his exchanges, 2 games & controller because of the after Christmas specials.
Then we got some groceries at Walmart and headed home after a quick lunch. Then I took a 2 hour much needed nap.
Urgent prayers needed!! I messed up!
I put a freezer pack from my fridge into the freezer, I thought it was Howard's lunch pack. It was with Dad's insulin!!!
Pray that either it clears up or he's able to control his diabetes through his eating...FYI..he doesn't always eat the right foods! He won't eat the right vegetables etc. My folks are going to drop me at the airport in the morning and then after dropping the kids back here at the house, they will head toward Denver to stay with Mom's cousin Jenny for two nights.
Continue to pray for good weather and safe roads and the best route home for them home. They hope to be back in Maryville, TN Sat or Sunday. They have no need to rush but no one can afford too many hotels along the way.
Until tomorrow....
Yesterday my wonderful eldest son, Troy, and my Dad installed a beautiful handrail on my steep stairs into my basement. Troy did a fabulous job of staining it and assisting Papa in the installation. He's been learning all sorts of honey do type projects helping Dad not be bored. They fixed my coffee table that had a broken leg & re-set the dishwasher that had come disconnected from the counter top, (people can be so rough when they do their chores.) Things that Howard just hasn't had time to get to. We are so blessed!
Mom, Dad, Trevor & I returned an unnecessary bracket to Home Depot. Trevor wanted to exchange his old DS and games for some used XBox games & a Controller since he chose a refurbished machine for his b-day/Christmas gift. I think he's pleased with his exchanges, 2 games & controller because of the after Christmas specials.
Then we got some groceries at Walmart and headed home after a quick lunch. Then I took a 2 hour much needed nap.
Urgent prayers needed!! I messed up!
I put a freezer pack from my fridge into the freezer, I thought it was Howard's lunch pack. It was with Dad's insulin!!!
Pray that either it clears up or he's able to control his diabetes through his eating...FYI..he doesn't always eat the right foods! He won't eat the right vegetables etc. My folks are going to drop me at the airport in the morning and then after dropping the kids back here at the house, they will head toward Denver to stay with Mom's cousin Jenny for two nights.
Continue to pray for good weather and safe roads and the best route home for them home. They hope to be back in Maryville, TN Sat or Sunday. They have no need to rush but no one can afford too many hotels along the way.
Until tomorrow....
Sunday, December 25, 2011
December 25, 2011
Merry Christmas!!!
What a great day with the family. We went to Christmas services and was so blessed by Pastor's Christmas Card Series message. So nice to see everyone today and last evening.
After service the kids opened their stockings and a few gifts. Thanks to every ones generosity they were able to get a few nice things. Thank you all1
We got tired today and picked up Chinese food for dinner. Then after a short nap, I spent some of the day writing checks to pay some medical bills. It's gonna get even uglier, but I had to pay what I could to get it onto my 2011 taxes. Please pray for the finances and insurance. I have a solo policy that 'shouldn't' give me any grief. I had the month of May 2011 and Oct 1-14, 2011 with no medical coverage. I've been covered for over 18 years prior to this. They are wanting to throw in a 'pre-existing' clause, please pray that there will be no issues since there has never been a cancer diagnosis or condition to consider, prior to my October 15 policy purchase. That being said, it's in God's hands, and your prayers. We then will be on a family group policy starting on February 1st, pray for no 'issues' with the transition to that policy as well. Unfortunately I foresee double deductibles with the dual policies for the first 2 months of the year etc. but the family plan with CIGNA will be a better policy.
My rash seems to be clearing and I slept OK. Had some time I got up and did some computer work in the middle of the night, but that seems to be how my brain is working lately.
Until tomorrow...I'm up wayyy to late tonight!
What a great day with the family. We went to Christmas services and was so blessed by Pastor's Christmas Card Series message. So nice to see everyone today and last evening.
After service the kids opened their stockings and a few gifts. Thanks to every ones generosity they were able to get a few nice things. Thank you all1
We got tired today and picked up Chinese food for dinner. Then after a short nap, I spent some of the day writing checks to pay some medical bills. It's gonna get even uglier, but I had to pay what I could to get it onto my 2011 taxes. Please pray for the finances and insurance. I have a solo policy that 'shouldn't' give me any grief. I had the month of May 2011 and Oct 1-14, 2011 with no medical coverage. I've been covered for over 18 years prior to this. They are wanting to throw in a 'pre-existing' clause, please pray that there will be no issues since there has never been a cancer diagnosis or condition to consider, prior to my October 15 policy purchase. That being said, it's in God's hands, and your prayers. We then will be on a family group policy starting on February 1st, pray for no 'issues' with the transition to that policy as well. Unfortunately I foresee double deductibles with the dual policies for the first 2 months of the year etc. but the family plan with CIGNA will be a better policy.
My rash seems to be clearing and I slept OK. Had some time I got up and did some computer work in the middle of the night, but that seems to be how my brain is working lately.
Until tomorrow...I'm up wayyy to late tonight!
Saturday, December 24, 2011
December 24, 1011
Merry Christmas Eve!!
We had another good day. I slept so-so, but didn't get up til 8ish again. Howard thought he had to work, got all the way there and found out he mixed up his schedule. Nice blessing to have him home with us for Christmas Eve!
After breakfast Howard, Mom & I ran some errands. Then I took my 2+ hour nap.
I received a beautiful, Hand made, especially for me, soft blue cap from my good friend April Fiet! Thanks so much!!! It's a perfect yarn, fit etc. God guided your hands girl!! I'm so blessed to have such talented friends.
Oh, and the other day I received a beautiful hand made lap quilt to help me through chemo through my Word of Life friend, Tammy Lewis, another cancer survivor. God bless you Tammy!!
We had dinner before our Annual Christmas Eve Candlelight Service. It was such a blessing to attend. It has been so hard missing the entire Christmas season here at home. I miss all our traditions of the Advent that we've done for the last 10 years here.
Looking forward to services tomorrow with my Valley Bible Church family. Pray for strength!!
Until tomorrow.....
We had another good day. I slept so-so, but didn't get up til 8ish again. Howard thought he had to work, got all the way there and found out he mixed up his schedule. Nice blessing to have him home with us for Christmas Eve!
After breakfast Howard, Mom & I ran some errands. Then I took my 2+ hour nap.
I received a beautiful, Hand made, especially for me, soft blue cap from my good friend April Fiet! Thanks so much!!! It's a perfect yarn, fit etc. God guided your hands girl!! I'm so blessed to have such talented friends.
Oh, and the other day I received a beautiful hand made lap quilt to help me through chemo through my Word of Life friend, Tammy Lewis, another cancer survivor. God bless you Tammy!!
We had dinner before our Annual Christmas Eve Candlelight Service. It was such a blessing to attend. It has been so hard missing the entire Christmas season here at home. I miss all our traditions of the Advent that we've done for the last 10 years here.
Looking forward to services tomorrow with my Valley Bible Church family. Pray for strength!!
Until tomorrow.....
December 23, 2011
Today was a GREAT day! I felt And I slept very well last night! Thank You Jesus!!
Got up 8ish, and after breakfast Mom, Dad & I went to Home Depot and selected a handrail for my stairs. If you've never been in my house, you have no idea just HOW steep my staircase into my basement is. As my legs weaken, I really need the handrail to steady myself.
I only needed one nap which was nice. Then I got a pedicure with Donna and we picked up some groceries at Walmart on the way home.
Gonna be in bed before 10 pm.
Until tomorrow....
Got up 8ish, and after breakfast Mom, Dad & I went to Home Depot and selected a handrail for my stairs. If you've never been in my house, you have no idea just HOW steep my staircase into my basement is. As my legs weaken, I really need the handrail to steady myself.
I only needed one nap which was nice. Then I got a pedicure with Donna and we picked up some groceries at Walmart on the way home.
Gonna be in bed before 10 pm.
Until tomorrow....
Thursday, December 22, 2011
December 22, 2011
Happy Happy Happy Birthday to my eldest son, Troy Robert Vradenburgh!!! He's 17 today!!! Where did that 5 lb 15 ounce 6 week pre-mee go??
Wow! What a day. I slept very well!!! Praise the Lord! We had a family photo shoot scheduled (with the grandparents) so I got up early to shower and 'approve the clothing selections'....guess no-one got that memo...
Had to actually take a nap before we could leave, but it was how it worked with food, meds and stamina, or lack thereof. Did manage to get the RX from the dermatologist at a much more reasonable coupon copay....God Send!! Now pray it does the job!
Home for another nap while Mom & Howard made our Christmas Dinner. Howard has to work the next 5 days. Then a big family Uno game....Hailey was winning till Papa pulled the last round and won by two points.
3rd nap of the day for me and Troy heads out to his Christmas Party at Youth group. I have to say my biggest complaint is that I'm spending too much of my family time sleeping/napping. My energy level is non-existent. I live in 3-4 hour shifts.
God Bless & remember...it's Christmas!!!
Wow! What a day. I slept very well!!! Praise the Lord! We had a family photo shoot scheduled (with the grandparents) so I got up early to shower and 'approve the clothing selections'....guess no-one got that memo...
Had to actually take a nap before we could leave, but it was how it worked with food, meds and stamina, or lack thereof. Did manage to get the RX from the dermatologist at a much more reasonable coupon copay....God Send!! Now pray it does the job!
Home for another nap while Mom & Howard made our Christmas Dinner. Howard has to work the next 5 days. Then a big family Uno game....Hailey was winning till Papa pulled the last round and won by two points.
3rd nap of the day for me and Troy heads out to his Christmas Party at Youth group. I have to say my biggest complaint is that I'm spending too much of my family time sleeping/napping. My energy level is non-existent. I live in 3-4 hour shifts.
God Bless & remember...it's Christmas!!!
Wednesday, December 21, 2011
December 21, 2011
What a day!!! I'm exhausted and didn't do a whole lot of nothing.
We got home to my place at 8pm and I was in bed before 9:30 p.m. Got a 2nd wind at 2 a.m. and unpacked my suitcase, but went to bed shortly after. Woke at 6 a.m. with the mountain of mail/bills/Christmas cards on my mind and had to sort through it, so I needed a 7:30 a.m. nap already.
Then came the find a dermatologist plan. After several calls, referrals, apts, and connections got a 2pm apt with a local doc who consulted with the oncologist. They've decided on a cream (that just might break the bank....yikes!) and we'll go from there. They both agree that I shouldn't start the chemo until this is gone. Only 1 week left of this Decadron anyway, assuming that's the cause.
On another note, the kids are enjoying Gramma & Papa being here and I hope the folks weren't too bored when Trevor's friend came to visit. I think they needed a down day anyway.
Tomorrow getting family pictures taken with the Grandparents, and having our Christmas Dinner since Howard has to work the rest of the weekend.
Keep praying for complete healing, more energy and less exhaustion and no more pain. I'm drained.
Until tomorrow......
We got home to my place at 8pm and I was in bed before 9:30 p.m. Got a 2nd wind at 2 a.m. and unpacked my suitcase, but went to bed shortly after. Woke at 6 a.m. with the mountain of mail/bills/Christmas cards on my mind and had to sort through it, so I needed a 7:30 a.m. nap already.
Then came the find a dermatologist plan. After several calls, referrals, apts, and connections got a 2pm apt with a local doc who consulted with the oncologist. They've decided on a cream (that just might break the bank....yikes!) and we'll go from there. They both agree that I shouldn't start the chemo until this is gone. Only 1 week left of this Decadron anyway, assuming that's the cause.
On another note, the kids are enjoying Gramma & Papa being here and I hope the folks weren't too bored when Trevor's friend came to visit. I think they needed a down day anyway.
Tomorrow getting family pictures taken with the Grandparents, and having our Christmas Dinner since Howard has to work the rest of the weekend.
Keep praying for complete healing, more energy and less exhaustion and no more pain. I'm drained.
Until tomorrow......
Tuesday, December 20, 2011
December 20, 2011
Good Morning!!! Sorry to say that I did NOT sleep last night. Missed some pain pills yesterday and paid for it throughout the night. Thankfully, it's now a bit more tolerable.
We are packing up the room as I type and getting the truck loaded. Hope to be on the road within the next 30 minutes. Weather doesn't look like it's cooperating, so we might have to go home via Las Vegas, adds several hours but better roads.
Headed out soon....
Thanks for your prayers!!
We are packing up the room as I type and getting the truck loaded. Hope to be on the road within the next 30 minutes. Weather doesn't look like it's cooperating, so we might have to go home via Las Vegas, adds several hours but better roads.
Headed out soon....
Thanks for your prayers!!
Monday, December 19, 2011
December 19, 2011
WOW! What a L-O-N-G day! The news isn't good or pretty. Serious Pray-ers are need. Now! And thank you from the bottom of my heart!
Lab work at 8:45. Series of apts between 10 & Noon. Nap, wig fitting, and going to my last bone radiation treatment at 4:20 then out to dinner with the family one more time.
Feeling rather weak and weary today, very drained, no energy whatsoever.
I have a very serious rash from all the meds. The oncologist had planned on starting me on pill chemo when I left here for Christmas but now because of the rash, he won't. My body can't handle it. It doesn't itch or hurt but it's rather startling to look at, thankfully it's not bad on the arms & face. Don't want to scare my children.
Mom, Dad & I will leave here in the morning and drive to Grand Junction. Then I need to go to the ER and hopefully find an on-call dermatologist to see me on Wed a.m.
I have to fly back to Phoenix on Tuesday 12/27 and will have my chemo port placed on 12/28... assuming the rash has been dealt with. I MUST start on the chemo ASAP, the cancer is spreading within the lymph nodes.
Please pray that the drugs I'm now coming off of will leave my system quickly and that my drug reactions will quit... immediately. God is in control of the spread of this cancer and we know He's more powerful than any drug or doctor.
Please pray for the fastest route home with no weather or travel incidents as it's close to 600 miles. Dad can only drive so far and so fast.
Until tomorrow......
Lab work at 8:45. Series of apts between 10 & Noon. Nap, wig fitting, and going to my last bone radiation treatment at 4:20 then out to dinner with the family one more time.
Feeling rather weak and weary today, very drained, no energy whatsoever.
I have a very serious rash from all the meds. The oncologist had planned on starting me on pill chemo when I left here for Christmas but now because of the rash, he won't. My body can't handle it. It doesn't itch or hurt but it's rather startling to look at, thankfully it's not bad on the arms & face. Don't want to scare my children.
Mom, Dad & I will leave here in the morning and drive to Grand Junction. Then I need to go to the ER and hopefully find an on-call dermatologist to see me on Wed a.m.
I have to fly back to Phoenix on Tuesday 12/27 and will have my chemo port placed on 12/28... assuming the rash has been dealt with. I MUST start on the chemo ASAP, the cancer is spreading within the lymph nodes.
Please pray that the drugs I'm now coming off of will leave my system quickly and that my drug reactions will quit... immediately. God is in control of the spread of this cancer and we know He's more powerful than any drug or doctor.
Please pray for the fastest route home with no weather or travel incidents as it's close to 600 miles. Dad can only drive so far and so fast.
Until tomorrow......
Sunday, December 18, 2011
December 18, 2011
Hello All! I'm a medicated mess today.
I'm having a reaction to the steroid and it's giving me a vicious rash.
It doesn't hurt or itch, but it's u-g-l-y! So I'm on Benadryl to counter act the rash while they wean me off the steroid. My brain doesn't want to function normally and I'm weak in the knees/legs today.
Went to services this morning after breakfast at the facility, then returned to the room for a two hour nap. Caught up with Andy & Hal & Willie to visit for a couple of hours before making it an early night. I'm just beat!
Tomorrow we are done! At least with the bone radiation. My day starts at 8:45 with labs, then a morning of Dr. apts with the team; I'm free to pack in the afternoon & have my radiation at 4:20 p.m. Then we'll go have dinner with the family.
Not sure how early we'll get on the road on Tuesday, but it's at least a 9 1/2 hour drive, so I'm hoping earlier rather than later.
Pray for a good nights sleep & for no icy roads please!!!
God Bless....Until tomorrow.....
I'm having a reaction to the steroid and it's giving me a vicious rash.
It doesn't hurt or itch, but it's u-g-l-y! So I'm on Benadryl to counter act the rash while they wean me off the steroid. My brain doesn't want to function normally and I'm weak in the knees/legs today.
Went to services this morning after breakfast at the facility, then returned to the room for a two hour nap. Caught up with Andy & Hal & Willie to visit for a couple of hours before making it an early night. I'm just beat!
Tomorrow we are done! At least with the bone radiation. My day starts at 8:45 with labs, then a morning of Dr. apts with the team; I'm free to pack in the afternoon & have my radiation at 4:20 p.m. Then we'll go have dinner with the family.
Not sure how early we'll get on the road on Tuesday, but it's at least a 9 1/2 hour drive, so I'm hoping earlier rather than later.
Pray for a good nights sleep & for no icy roads please!!!
God Bless....Until tomorrow.....
Saturday, December 17, 2011
December 17, 2011
Hello again! Mom & I went to bed at 9pm....and slept (on & off) till 7:30 a.m.!!!
Dad joined us for breakfast, Mom did laundry while Dad watched TV and I finished my Tax Update course. We had lunch, the met up with Andy. He showed off his awesome house to the folks then we caught up with Uncle Hal & Willie; & Aunt Joan & Uncle Bill for Saturday night pizza.
Practically asleep on my feet and I'm getting a rash from the drugs, doesn't bother me but looks pretty startling with my pale skin. Loving not having to deal with the hair falling out because it's just so warm around here. Gonna be home before I can get used to the wigs due to the current (but rare) damp humidity. Lots of rain right now.
Just this short post to keep you up-to-date on what's happening. We just had a good day of visiting and no treatment again until Monday.
Until tomorrow....
Dad joined us for breakfast, Mom did laundry while Dad watched TV and I finished my Tax Update course. We had lunch, the met up with Andy. He showed off his awesome house to the folks then we caught up with Uncle Hal & Willie; & Aunt Joan & Uncle Bill for Saturday night pizza.
Practically asleep on my feet and I'm getting a rash from the drugs, doesn't bother me but looks pretty startling with my pale skin. Loving not having to deal with the hair falling out because it's just so warm around here. Gonna be home before I can get used to the wigs due to the current (but rare) damp humidity. Lots of rain right now.
Just this short post to keep you up-to-date on what's happening. We just had a good day of visiting and no treatment again until Monday.
Until tomorrow....
Friday, December 16, 2011
December 16, 2011
Hello Again! I slept wonderful again last night! So blessed!!
Mom actually slept till 7:30...she's slacking..lol... (that's 9:30 east coast time!!)
We went to breakfast at the hotel, then headed over to the facility to research my 'prescription cranial prosthetic divice' to see what was covered by my insurance. Unfortunately, my policy won't cover my wig, but it was worth the research anyway.
I had my head shaved, It looks great!!! I look like Pete after his brain surgery. Then I had a pedicure, it's so nice to be pampered. I'll post some pics later....lol.
I got a couple of wigs today and about 4 different hat's & head scarves. They are so much fun! Gonna have to find my best look, hopefully without the itch. :~))
Mom & Dad &, Dad's sister Joan & Bro-in-law Bill went shopping & out to lunch while I took a much needed nap, my morning pampering drained my energy.
I had my bone radiation treatment and they returned to the hotel at almost the same moment as I. Dad's on his way back to Hal`s; Mom & I will head to the facility for dinner shortly.
I've been overwhelmed by the outpouring of love, prayers and words and cards of encouragement! Thank you ALL from the bottom of my heart. Words just cannot express the thanks I have for you all.
Since Monday afternoon is my last day of bone radiation!!!!..... The 'plan' is to leave for Colorado on Tuesday, early a.m.... it's a 9 1/2 hour drive so I'm sure we'll make it fine in just one day.
Monday morning I'll have one last consult with my team of Doctors as they decide what my Chemo schedule will be. What we do know: I'm going home for Christmas. What we don't know: Can I wait til after New Years to schedule the Chemo Port?
I'm hoping to go home for two weeks; but we'll see. Again, once Chemo starts, it will only be 2 - 3 day trips; every 2 -3 weeks, depending upon my lab results.
If the weather cooperates, I'm sending the folks home through Denver so Mom can see her Aunts, Uncle & cousins if the opportunity allows. Plus, it's a shorter drive, mileage wise home. They can take their time.
I'm 'off' from any further treatment until Monday, so tomorrow, I think we're going sight seeing & Mom & Dad will go see Andy's place.
Planning on a day of visiting Sat with the family in the evening after the bell ringing is done. Plus, it's Pizza night!
Time for dinner....Until tomorrow.....
Mom actually slept till 7:30...she's slacking..lol... (that's 9:30 east coast time!!)
We went to breakfast at the hotel, then headed over to the facility to research my 'prescription cranial prosthetic divice' to see what was covered by my insurance. Unfortunately, my policy won't cover my wig, but it was worth the research anyway.
I had my head shaved, It looks great!!! I look like Pete after his brain surgery. Then I had a pedicure, it's so nice to be pampered. I'll post some pics later....lol.
I got a couple of wigs today and about 4 different hat's & head scarves. They are so much fun! Gonna have to find my best look, hopefully without the itch. :~))
Mom & Dad &, Dad's sister Joan & Bro-in-law Bill went shopping & out to lunch while I took a much needed nap, my morning pampering drained my energy.
I had my bone radiation treatment and they returned to the hotel at almost the same moment as I. Dad's on his way back to Hal`s; Mom & I will head to the facility for dinner shortly.
I've been overwhelmed by the outpouring of love, prayers and words and cards of encouragement! Thank you ALL from the bottom of my heart. Words just cannot express the thanks I have for you all.
Since Monday afternoon is my last day of bone radiation!!!!..... The 'plan' is to leave for Colorado on Tuesday, early a.m.... it's a 9 1/2 hour drive so I'm sure we'll make it fine in just one day.
Monday morning I'll have one last consult with my team of Doctors as they decide what my Chemo schedule will be. What we do know: I'm going home for Christmas. What we don't know: Can I wait til after New Years to schedule the Chemo Port?
I'm hoping to go home for two weeks; but we'll see. Again, once Chemo starts, it will only be 2 - 3 day trips; every 2 -3 weeks, depending upon my lab results.
If the weather cooperates, I'm sending the folks home through Denver so Mom can see her Aunts, Uncle & cousins if the opportunity allows. Plus, it's a shorter drive, mileage wise home. They can take their time.
I'm 'off' from any further treatment until Monday, so tomorrow, I think we're going sight seeing & Mom & Dad will go see Andy's place.
Planning on a day of visiting Sat with the family in the evening after the bell ringing is done. Plus, it's Pizza night!
Time for dinner....Until tomorrow.....
Thursday, December 15, 2011
December 15, 2011
Happy Happy Birthday to my lit'l sis, Brenda Shea & My beautiful niece Elizabeth Spetrini!!!
Today was a doozy guys. I lost more than 1/2 of my hair, shaving it off tomorrow, so Andy will officially have more hair than I......love ya cuz. ;-)
Very blessed to have slept very well last night, still only getting the four hour stretch, but...I'm sleeping!
We went to breakfast, mom had a manicure, I had a wig fitting, and I bought a hat, guess I'm going hat shopping this week for a few more too.
I worked on the first half of Tax Update TS12 for H&R today and took a nap.
After a very late lunch I had my Exit Exam with Dr. Chong, my Radiological Oncologist and he's please with my lack of side effects from both RX's and the radiation.....well of course with the expected hair loss....
Mom & I went to a scrap booking session and made a couple of Christmas Cards and then headed back to the room. Mom just stuffed dozens of Christmas Cards to mail, she's so productive...Don't think I'm mailing cards this year.... Maybe after New Years.....
I'm beat...headed to bed....May the Lord Bless you.......Until tomorrow........
Today was a doozy guys. I lost more than 1/2 of my hair, shaving it off tomorrow, so Andy will officially have more hair than I......love ya cuz. ;-)
Very blessed to have slept very well last night, still only getting the four hour stretch, but...I'm sleeping!
We went to breakfast, mom had a manicure, I had a wig fitting, and I bought a hat, guess I'm going hat shopping this week for a few more too.
I worked on the first half of Tax Update TS12 for H&R today and took a nap.
After a very late lunch I had my Exit Exam with Dr. Chong, my Radiological Oncologist and he's please with my lack of side effects from both RX's and the radiation.....well of course with the expected hair loss....
Mom & I went to a scrap booking session and made a couple of Christmas Cards and then headed back to the room. Mom just stuffed dozens of Christmas Cards to mail, she's so productive...Don't think I'm mailing cards this year.... Maybe after New Years.....
I'm beat...headed to bed....May the Lord Bless you.......Until tomorrow........
Wednesday, December 14, 2011
December 14, 2011
Hello again! It was a long day of appointments, that started with a wonderful massage! What a way to start the day!
Then Mom & I had a late brunch, and Dad joined us shortly thereafter.
I went to speech therapy, for cognitive reasoning skills, "in case I need them later with Chemo Brain".
Then we met with my team of Doctors to discuss my "plan"; Unfortunately, we cannot develop the 'full plan' until my labs that will be drawn next Monday morning, when I'll meet, again, with the team of Doctors. They take such good care of me!! I think Mom & Dad feel better after meeting the team, and seeing the 'whole body' approach they use and how each Dr. works together to get me the best plan possible. Dad likes many of my Dr's, they happen to have the first name "Daniel"...lol.
Today was my...last day of brain radiation. Yeah. Only 3 more treatments on my right leg for the bone radiation.
Today's complaint, thanks to the brain radiation....I lost WAY TOO MUCH hair today. :-( .... not thrilled, but knew it was coming. Was just hoping it would wait until after chemo before coming out. Thankfully, not in chunks, but it's getting thin, have more hair than I thought since I still have some tonight.
Until tomorrow.....
Then Mom & I had a late brunch, and Dad joined us shortly thereafter.
I went to speech therapy, for cognitive reasoning skills, "in case I need them later with Chemo Brain".
Then we met with my team of Doctors to discuss my "plan"; Unfortunately, we cannot develop the 'full plan' until my labs that will be drawn next Monday morning, when I'll meet, again, with the team of Doctors. They take such good care of me!! I think Mom & Dad feel better after meeting the team, and seeing the 'whole body' approach they use and how each Dr. works together to get me the best plan possible. Dad likes many of my Dr's, they happen to have the first name "Daniel"...lol.
Today was my...last day of brain radiation. Yeah. Only 3 more treatments on my right leg for the bone radiation.
Today's complaint, thanks to the brain radiation....I lost WAY TOO MUCH hair today. :-( .... not thrilled, but knew it was coming. Was just hoping it would wait until after chemo before coming out. Thankfully, not in chunks, but it's getting thin, have more hair than I thought since I still have some tonight.
Until tomorrow.....
December 14, 2011
Good Morning!
Just a short praise to say I slept deep twice last night, with a chunk of prayer time in the middle. Missed a pain pill yesterday and paid for it or a couple hours. Guess I won't let that happen again.
Headed out to a massage ;-) and my day of appointments with all the Doctors. I guess today is decision making day for after Christmas.
Oh, and today is my ....last day of brain radiation!! Rather happy about that because I.... lost an awful lot of hair this morning....It's getting thin..... :-(
More info later...
Just a short praise to say I slept deep twice last night, with a chunk of prayer time in the middle. Missed a pain pill yesterday and paid for it or a couple hours. Guess I won't let that happen again.
Headed out to a massage ;-) and my day of appointments with all the Doctors. I guess today is decision making day for after Christmas.
Oh, and today is my ....last day of brain radiation!! Rather happy about that because I.... lost an awful lot of hair this morning....It's getting thin..... :-(
More info later...
Tuesday, December 13, 2011
December 13, 2011
Hello everyone! For a 'short' day I'm just getting to y'all and it's almost bedtime!
First of all, Praise the Lord! I slept like a rock, for about four hours and still slept more after. I'll take it!
My day started with my radiation treatment, bright (not so bright, it was still dark here) & early, at 7 a.m. Actually arrived a few minutes early, they took me straight in, and I left the facility before 7:15....
We returned to the hotel for a quick breakfast, and then as what is becoming a habit, I took my morning nap; slept for about 90 minutes. Dad arrived 10ish and we took him on a tour of the facility and then to the dining hall for a fabulous lunch.
Then we went shopping. It's hot here, or at least damp and muggy with rain, Mom's and my clothes are just too warm, had to go to and get T-shirts...lol...they've got the heat on here...and then back to Uncle Hal's to meet up with Andy and play with their dogs; they are gonna sleep well tonight.
Andy gave us a lift back to the hotel, so Dad wouldn't get lost in the dark and the rain. Then I got to enjoy a Skype video call with the kids!! It was great to see their smiley faces!!
But it's getting late and I'm fading fast, so I'm going to head to bed.
Thanks for your prayers, words or encouragement, letters, cards, meals & rides for my kids. You have no idea how special you all are!
Many blessings...Until later....
First of all, Praise the Lord! I slept like a rock, for about four hours and still slept more after. I'll take it!
My day started with my radiation treatment, bright (not so bright, it was still dark here) & early, at 7 a.m. Actually arrived a few minutes early, they took me straight in, and I left the facility before 7:15....
We returned to the hotel for a quick breakfast, and then as what is becoming a habit, I took my morning nap; slept for about 90 minutes. Dad arrived 10ish and we took him on a tour of the facility and then to the dining hall for a fabulous lunch.
Then we went shopping. It's hot here, or at least damp and muggy with rain, Mom's and my clothes are just too warm, had to go to and get T-shirts...lol...they've got the heat on here...and then back to Uncle Hal's to meet up with Andy and play with their dogs; they are gonna sleep well tonight.
Andy gave us a lift back to the hotel, so Dad wouldn't get lost in the dark and the rain. Then I got to enjoy a Skype video call with the kids!! It was great to see their smiley faces!!
But it's getting late and I'm fading fast, so I'm going to head to bed.
Thanks for your prayers, words or encouragement, letters, cards, meals & rides for my kids. You have no idea how special you all are!
Many blessings...Until later....
Monday, December 12, 2011
December 12, 2011
Happy Birthday Trevor Dean!!! Love you Boy! Miss you bunches!!
Didn't sleep very well last night, but did get rest. Not complaining, just stating the facts. Had dinner out with the entire Dearing Clan last night. Chinese ~ loved the Lemon Chicken!
Andy dropped us girls back at the hotel early and we made fast tracks to get ready for bed, but stayed up late talking, reading and watching TV. Perfect girls night out, or is that "in".
My treatment today included a much needed massage! What a treat!
Since rather tired, not connecting with the family and took 2 short naps. Might consider going to see the zoo (Christmas) lights later this evening, but I doubt it.
Tomorrow my radiation treatment is early in the a.m., so we'll catch up with Dad by mid Morning and maybe get some shopping or sightseeing in. Rather mundane in the scheme of things, but I'll take it for now, especially with my manageable pain levels at this time.
Thanks to everyone for your prayers, cards, and words of encouragement. God is GOOD! Looking forward to spending time with the family over Christmas!
Until tomorrow.....
Didn't sleep very well last night, but did get rest. Not complaining, just stating the facts. Had dinner out with the entire Dearing Clan last night. Chinese ~ loved the Lemon Chicken!
Andy dropped us girls back at the hotel early and we made fast tracks to get ready for bed, but stayed up late talking, reading and watching TV. Perfect girls night out, or is that "in".
My treatment today included a much needed massage! What a treat!
Since rather tired, not connecting with the family and took 2 short naps. Might consider going to see the zoo (Christmas) lights later this evening, but I doubt it.
Tomorrow my radiation treatment is early in the a.m., so we'll catch up with Dad by mid Morning and maybe get some shopping or sightseeing in. Rather mundane in the scheme of things, but I'll take it for now, especially with my manageable pain levels at this time.
Thanks to everyone for your prayers, cards, and words of encouragement. God is GOOD! Looking forward to spending time with the family over Christmas!
Until tomorrow.....
Sunday, December 11, 2011
December 11, 2011 - Good Morning!
Another short praise to say, I slept so well last night! BEST night's sleep in over two months!
I'm still not sleeping through the night, but after getting my 4 hour pain pill, I am returning to sleep, not as deep, but getting additional rest beyond the initial 4 hours. Feel soooo much better with a clearer head.
Went to a late breakfast, then planned on heading to morning service across the street, but feeling tired, so I'm going to take a nap before the folks get here instead.
Until later....
I'm still not sleeping through the night, but after getting my 4 hour pain pill, I am returning to sleep, not as deep, but getting additional rest beyond the initial 4 hours. Feel soooo much better with a clearer head.
Went to a late breakfast, then planned on heading to morning service across the street, but feeling tired, so I'm going to take a nap before the folks get here instead.
Until later....
December 10, 2011
Hello Again. Today was a good day! I slept most of it.
After my later than usual breakfast I returned to my room and instead of watching t.v., reading, or playing on facebook, I took a 2 1/2 hour nap. Got up for less than 2 hours, had a snack, and napped again for over 3 hours!! Praise the LORD! My meds & treatment are finally doing the job.
Andy came and took me shopping, then to Uncle Hal's & Willie's to do laundry, and we all went out to Pizza for dinner with Uncle Bill & Aunt Joan.
It was very relaxing, rest-filled day!
The folks made it to the NM/AZ border and should be here early Sunday afternoon.
Until later....
After my later than usual breakfast I returned to my room and instead of watching t.v., reading, or playing on facebook, I took a 2 1/2 hour nap. Got up for less than 2 hours, had a snack, and napped again for over 3 hours!! Praise the LORD! My meds & treatment are finally doing the job.
Andy came and took me shopping, then to Uncle Hal's & Willie's to do laundry, and we all went out to Pizza for dinner with Uncle Bill & Aunt Joan.
It was very relaxing, rest-filled day!
The folks made it to the NM/AZ border and should be here early Sunday afternoon.
Until later....
Saturday, December 10, 2011
December 10, 2011 - Good Morning!
Good Morning! I'm so happy to tell you all I got some decent rest last night. Yeah! As the night wore on and I could feel myself crawling up through a morphine cloud, and I'm thinking, "Wow, Thank you Jesus, I slept deep, it must be 6 hours later!"..... it had been less than 4 hours, but it felt so good.
I took care of the, now necessary, 4 hour pain pill & drink, restroom break and crawled back in to stay in bed til after 8 a.m. I drifted in and out again and again, but I did sleep. That's what matters to me right now.
I post this short praise because I've had people tell me they check my blog 2x a day or more. BLESS YOU! I won't promise to post more than once a day, but I'm going to do some laundry, shopping, and family visiting today, as my pain level and their schedules allow. So it could be late before I post later today.
A big 'Happy Birthday' shout out to my Brother-in-law, Patrick Gerdin, in New York & my sis-in-law Chrissie in Massachusetts. Have a great day guys!!!
Keep praying for the folks, they should be here by Sunday. Safe travels
Love ya!
I took care of the, now necessary, 4 hour pain pill & drink, restroom break and crawled back in to stay in bed til after 8 a.m. I drifted in and out again and again, but I did sleep. That's what matters to me right now.
I post this short praise because I've had people tell me they check my blog 2x a day or more. BLESS YOU! I won't promise to post more than once a day, but I'm going to do some laundry, shopping, and family visiting today, as my pain level and their schedules allow. So it could be late before I post later today.
A big 'Happy Birthday' shout out to my Brother-in-law, Patrick Gerdin, in New York & my sis-in-law Chrissie in Massachusetts. Have a great day guys!!!
Keep praying for the folks, they should be here by Sunday. Safe travels
Love ya!
Friday, December 9, 2011
December 9, 2011
Hello! For a day with only 1 early appointment that was over in less than an hour, I stayed at the facility with lots to do all day long!
After another so-so nights 'alert rest', my radation treatment was at 7:30 a.m. I remainded in the library reading, checking my email, visiting and then went to breakfast. The dining room here is amazing!!! Organic, gluten-free, fat free, sugar free and tastey! The price break they give to the patients and their caregivers is unbelievable!
I met a lady yesterday, Mary Beth, from Maryville, TN!! She's returning home today, but she'll be back again; she's looking forward to meeting up with the folks one day.
At noon, I went to a Christmas party and had a wonderful lunch. At 2pm there was a December Birthday cake in the dining room, and at 3:00 pm there was a Grade School choir that came to sing carols. I think I was back to my room before 4:30, but I'm tuckered out. Glad I brought dinner home with me so I don't have to go back.
I have some names for everyone to pray for that God has sent by my way:
As I travel this road, continue your prayers for me, but please pray for those who God leads through my path that I can encourage in their difficult journey. We are on this road together!
After another so-so nights 'alert rest', my radation treatment was at 7:30 a.m. I remainded in the library reading, checking my email, visiting and then went to breakfast. The dining room here is amazing!!! Organic, gluten-free, fat free, sugar free and tastey! The price break they give to the patients and their caregivers is unbelievable!
I met a lady yesterday, Mary Beth, from Maryville, TN!! She's returning home today, but she'll be back again; she's looking forward to meeting up with the folks one day.
At noon, I went to a Christmas party and had a wonderful lunch. At 2pm there was a December Birthday cake in the dining room, and at 3:00 pm there was a Grade School choir that came to sing carols. I think I was back to my room before 4:30, but I'm tuckered out. Glad I brought dinner home with me so I don't have to go back.
I have some names for everyone to pray for that God has sent by my way:
- Clarissa ~ Las Vegas (I think) been on this road a while needs some encouragement.
- Dean (caregiver) & Kathleen, new diagnosis, just sold a house and are downsizing over Christmas.
- Patty ~ anal cancer & Betty (Mom) been here since August ~ from Alaska
- My good friend, Debbie Warren, in Tampa who was diagnoised at the same time I was. Mom of four boys ~ great support system.
As I travel this road, continue your prayers for me, but please pray for those who God leads through my path that I can encourage in their difficult journey. We are on this road together!
Thursday, December 8, 2011
December 8, 2011
Hello!
Today/last night was a very surreal day for me. I stated in my evening post that I was headed to bed super early, 7ish, because I was 'asleep on my feet' and was really looking forward to the rest. Yet after taking all my bedtime RX's and climbing in I started reading a book to unwind and turn off the brain. It had the opposite effect and I ended up watching TV until a more reasonable bedtime of 10:30. But here is where it got odd; I had 'alert rest' almost all night, in and out of sleep, but not in a lot of pain either, Thank You Jesus! Didn't want to get up, but my mind didn't always shut off, (thank you Decadron).
I got up before 9 am and went to breakfast feeling a bit like my blood sugar had dropped. Yet after returning to my room, I lost 75% of my breakfast and went back to bed for 2 hours of almost real sleep. I don't tell you these, 'TMI details', to have you feel sorry for me. I'm just sharing my day and my experiences, to answer every ones "How was your day?" questions and be honest, (it might get graphic down the road,) about what is happening. I can have an 'off day' and still have the 'joy of the Lord' and I do! A relationship with Christ isn't always sunshine and roses, look at what HE did on the Cross for US!
The nighttime mind wanderings have been amazing and they are usually filled with prayer and praise about everything that has happened, the people I've met, and the amazing results I've seen since my diagnosis. For instance, I know of at least 2 sister's-in-law, both a couple years older than I who have scheduled their own mammograms since my diagnosis. This is a good thing! One day I'll create a blog with many of the praises and night time thoughts I've had since arriving.
I only had my radiation treatment and my first follow-up visit with Dr. Chong my Radiological Oncologist. He is very pleased with my lack of side effects of the radiation and is thrilled that the morphine is finally helping me, rest, if not yet sleep. My mental stress level is better, and I'm mellow thanks to the lower pain levels. It feels rather nice.
The folks are on the road! Not sure of the ETA, they'll keep it slow and watch the weather. I'm sure they'll be here before Monday.
By the way, did I ever tell you they gave me five tattoos?
Hee hee, think of an Ultra Fine sharpie pen, I have 3 polka dots going up my right thigh, and one on each hip! Hailey can play dot-to-dot on my leg!
One last request before I go; my cousin Andy, who has been here for me this month, as needed, just was informed his company was sold. Last time we spoke, he isn't sure of the next steps etc, and I don't know the details yet. Pray for a smooth transition, should he stay? should he go? Is there a compensation package? the works of, 'What next?' type questions when you've held a long term job.
Until later...Many Blessings to you all!
1Cor.15:57: THANKS BE TO GOD WHO GIVES US THE VICTORY THROUGH OUR LORD JESUS CHRIST.
Today/last night was a very surreal day for me. I stated in my evening post that I was headed to bed super early, 7ish, because I was 'asleep on my feet' and was really looking forward to the rest. Yet after taking all my bedtime RX's and climbing in I started reading a book to unwind and turn off the brain. It had the opposite effect and I ended up watching TV until a more reasonable bedtime of 10:30. But here is where it got odd; I had 'alert rest' almost all night, in and out of sleep, but not in a lot of pain either, Thank You Jesus! Didn't want to get up, but my mind didn't always shut off, (thank you Decadron).
I got up before 9 am and went to breakfast feeling a bit like my blood sugar had dropped. Yet after returning to my room, I lost 75% of my breakfast and went back to bed for 2 hours of almost real sleep. I don't tell you these, 'TMI details', to have you feel sorry for me. I'm just sharing my day and my experiences, to answer every ones "How was your day?" questions and be honest, (it might get graphic down the road,) about what is happening. I can have an 'off day' and still have the 'joy of the Lord' and I do! A relationship with Christ isn't always sunshine and roses, look at what HE did on the Cross for US!
The nighttime mind wanderings have been amazing and they are usually filled with prayer and praise about everything that has happened, the people I've met, and the amazing results I've seen since my diagnosis. For instance, I know of at least 2 sister's-in-law, both a couple years older than I who have scheduled their own mammograms since my diagnosis. This is a good thing! One day I'll create a blog with many of the praises and night time thoughts I've had since arriving.
I only had my radiation treatment and my first follow-up visit with Dr. Chong my Radiological Oncologist. He is very pleased with my lack of side effects of the radiation and is thrilled that the morphine is finally helping me, rest, if not yet sleep. My mental stress level is better, and I'm mellow thanks to the lower pain levels. It feels rather nice.
The folks are on the road! Not sure of the ETA, they'll keep it slow and watch the weather. I'm sure they'll be here before Monday.
By the way, did I ever tell you they gave me five tattoos?
Hee hee, think of an Ultra Fine sharpie pen, I have 3 polka dots going up my right thigh, and one on each hip! Hailey can play dot-to-dot on my leg!
One last request before I go; my cousin Andy, who has been here for me this month, as needed, just was informed his company was sold. Last time we spoke, he isn't sure of the next steps etc, and I don't know the details yet. Pray for a smooth transition, should he stay? should he go? Is there a compensation package? the works of, 'What next?' type questions when you've held a long term job.
Until later...Many Blessings to you all!
1Cor.15:57: THANKS BE TO GOD WHO GIVES US THE VICTORY THROUGH OUR LORD JESUS CHRIST.
"HE will give the victory into thy hands, if only thou wilt fight manfully by HIS side,trusting not in thyself, but in HIS POWER AND GOODNESS". (Thanks Donna for today's verse)
Wednesday, December 7, 2011
December 7, 2011 - p.m. post
Hello~
I feel better today, pain-wise, than I have in two months, thanks to the morphine rest I received last night. I might even go to bed early tonight. I'm already done for the day and rather tired.
I had labs drawn, radiation treatment, and the meeting with my team of Dr's. My chemo will not start until after Christmas because they need at least a week after radiation before they do the labs etc. I'll know a better start date in a week. My folks are leaving TN starting tomorrow, (I think) and driving here, so I'm going to let them drive me home to Colorado. (Troy & Trevor, if you are reading this, let's surprise Hailey for Christmas!) Due to the chaos & cost of Christmas travel, they have never celebrated Christmas with us, well not since Troy was 3 days old and we were still in NY, I don't think he remembers.
I did get the opportunity to view my PET scan and MRI pictures this afternoon. I have to be honest; it's not pretty. It's actually very bad! The bad news is, most, if not all, of the bone pain I experience in my hips, legs, arms, shoulders, neck, back etc, is the cancer.
The GOOD NEWS is that it's not in my kidney's or liver and the brain spread is very minimal, so the brain radiation should do the trick. I know my oncologist was concerned that I would get depressed after seeing the scan, but if anything, I'm empowered so see how wonderful the Lord is going to be with stopping this in it's tracks.
Remember: "God is good, all the time, no matter what!"
In honor of my Sunday School class Please read Psalm 23 tonight before you go to bed.
God bless....Until later!
I feel better today, pain-wise, than I have in two months, thanks to the morphine rest I received last night. I might even go to bed early tonight. I'm already done for the day and rather tired.
I had labs drawn, radiation treatment, and the meeting with my team of Dr's. My chemo will not start until after Christmas because they need at least a week after radiation before they do the labs etc. I'll know a better start date in a week. My folks are leaving TN starting tomorrow, (I think) and driving here, so I'm going to let them drive me home to Colorado. (Troy & Trevor, if you are reading this, let's surprise Hailey for Christmas!) Due to the chaos & cost of Christmas travel, they have never celebrated Christmas with us, well not since Troy was 3 days old and we were still in NY, I don't think he remembers.
I did get the opportunity to view my PET scan and MRI pictures this afternoon. I have to be honest; it's not pretty. It's actually very bad! The bad news is, most, if not all, of the bone pain I experience in my hips, legs, arms, shoulders, neck, back etc, is the cancer.
The GOOD NEWS is that it's not in my kidney's or liver and the brain spread is very minimal, so the brain radiation should do the trick. I know my oncologist was concerned that I would get depressed after seeing the scan, but if anything, I'm empowered so see how wonderful the Lord is going to be with stopping this in it's tracks.
Remember: "God is good, all the time, no matter what!"
In honor of my Sunday School class Please read Psalm 23 tonight before you go to bed.
God bless....Until later!
December 7, 2011 - SHORT a.m. post
Good Morning! I did get some sleep last night. Not through the night but a bit deeper and less painful. I'm guessing but I think my body may have adjusted to the 2-3 hour sleep cycle I've had for the last 2 months and may take a day or two to get back. Just an assumption though, and I also am guessing that I need to build up the morphine into my system to make it last.
The good news is, I rested, and although I'm still tired, I'm feeling better today than I have in weeks!
That's all for now. Have to keep getting ready for a big day of appointments and planning. Squeeze in some shopping too.
The good news is, I rested, and although I'm still tired, I'm feeling better today than I have in weeks!
That's all for now. Have to keep getting ready for a big day of appointments and planning. Squeeze in some shopping too.
Tuesday, December 6, 2011
December 6, 2011
Hello Prayer Warriors! I slept again so-so with the Ambien CR, but the pain made it through before the night was over. Although I wasn't sleeping deeply, I did get quiet rest until almost 7:30 a.m.
Despite the short night's sleep, today was an easy day. I wasn't scheduled to go to the facility until 4:00 p.m. for radiation on both the brain & bones. But the Lord was good! I got a squeezed in apt with Dr. Pain Management before noon and after the consult he determined that all the previous RX's I've received were just not enough, and I needed to stay on something stronger, on a consistent schedule without waiting for the pain to return. He gave me a RX for...roll the drums....morphine. Most of you know I'd prefer alternative and natural remedies, but this sleep deprivation and bone pain had just worn me down. I've been told that now that the leg/bone radiation has begun, the pain level should start to decrease rather quickly.
The bone radiation is 10 sessions as well so that will be complete on 12/19.
Tomorrow afternoon I have my Team Treatment planning meeting. They will draw labs and I 'think' we'll draw up a Christmas and Chemo schedule. So stay tuned tomorrow for updates.
Blessings to all & thanks for your prayers!
Happy Birthday to my beautiful sister, Dawn Marie Spetrini & my Aunt Inger (whose number of candles I'm not to mention.)
Today's Verse: "He gives strength to the weary and increases the power of the weak." Isaiah 40:29
Despite the short night's sleep, today was an easy day. I wasn't scheduled to go to the facility until 4:00 p.m. for radiation on both the brain & bones. But the Lord was good! I got a squeezed in apt with Dr. Pain Management before noon and after the consult he determined that all the previous RX's I've received were just not enough, and I needed to stay on something stronger, on a consistent schedule without waiting for the pain to return. He gave me a RX for...roll the drums....morphine. Most of you know I'd prefer alternative and natural remedies, but this sleep deprivation and bone pain had just worn me down. I've been told that now that the leg/bone radiation has begun, the pain level should start to decrease rather quickly.
The bone radiation is 10 sessions as well so that will be complete on 12/19.
Tomorrow afternoon I have my Team Treatment planning meeting. They will draw labs and I 'think' we'll draw up a Christmas and Chemo schedule. So stay tuned tomorrow for updates.
Blessings to all & thanks for your prayers!
Happy Birthday to my beautiful sister, Dawn Marie Spetrini & my Aunt Inger (whose number of candles I'm not to mention.)
Today's Verse: "He gives strength to the weary and increases the power of the weak." Isaiah 40:29
Monday, December 5, 2011
December 5, 2011
Happy Birthday to Me! Thank you EVERYONE for your fb posts, txts, emails and b-day wishes! I've had more recognition of this birthday day than I have in years, and it's not even a 'big one'.
I slept so-so last night; but still have lots of achy bone pain. My day started with a Speech Therapy - Cognitive consult. She said my brain function is still fine, ya know ~ above average ~ hee hee ~ but I may experience various 'potential' side effects over the course of treatment. But she was very concerned about my lack of REM sleep and wanted that dealt with ASAP because it will cause me to lose my short term memory. So she requested I ask for pain meds to get me through till the leg radiation begins. They say within days if not hours of the bone radiation, I'll start to feel pain relief.
After my brain radiation treatment they created a mold for my right leg, for sure the cancer is in my right femur, beyond that, God only knows. Well, they probably know, I just have not asked the right people yet. Waiting for another consult to review all my x-rays etc. They will begin the bone radiation tomorrow. So unless, my orders for a Pain Management Consult come through early, or there is a massage cancellation, or acupuncture cancellation, I'm not even due at the facility tomorrow until 4pm.
Gonna head over to the facility to hear some Christmas carols.
Until Later.....
I slept so-so last night; but still have lots of achy bone pain. My day started with a Speech Therapy - Cognitive consult. She said my brain function is still fine, ya know ~ above average ~ hee hee ~ but I may experience various 'potential' side effects over the course of treatment. But she was very concerned about my lack of REM sleep and wanted that dealt with ASAP because it will cause me to lose my short term memory. So she requested I ask for pain meds to get me through till the leg radiation begins. They say within days if not hours of the bone radiation, I'll start to feel pain relief.
After my brain radiation treatment they created a mold for my right leg, for sure the cancer is in my right femur, beyond that, God only knows. Well, they probably know, I just have not asked the right people yet. Waiting for another consult to review all my x-rays etc. They will begin the bone radiation tomorrow. So unless, my orders for a Pain Management Consult come through early, or there is a massage cancellation, or acupuncture cancellation, I'm not even due at the facility tomorrow until 4pm.
Gonna head over to the facility to hear some Christmas carols.
Until Later.....
Sunday, December 4, 2011
December 4, 2011 ~ Morning Post
Good Morning! I hear it's sunny at least in Tennessee to a.m.; Don't think the weather has decided it self yet here today. Hoping the damp goes away and I get some relief from my achy bones.
Good News! I slept for about 5 hours before needing a bathroom break, had too much soda at our late supper last night, and then still dozed in and out for 2 more hours before my alarm. Going to hit the showers and try to beat the Middle School Football team to the breakfast bar before church. Facility will give me a lift; it's not a long walk but not a great idea solo with my hips right now.
No treatment today, so may get to spend more time with the local family this afternoon after services. Laying in bed reading and watching football will be relaxing too, if they can't make it.
1 I lift up my eyes to the mountains—
where does my help come from?
2 My help comes from the LORD,
the Maker of heaven and earth.
3 He will not let your foot slip—
he who watches over you will not slumber; Psalm 121:1-3 NIV
Have a great day!
Until later....
Good News! I slept for about 5 hours before needing a bathroom break, had too much soda at our late supper last night, and then still dozed in and out for 2 more hours before my alarm. Going to hit the showers and try to beat the Middle School Football team to the breakfast bar before church. Facility will give me a lift; it's not a long walk but not a great idea solo with my hips right now.
No treatment today, so may get to spend more time with the local family this afternoon after services. Laying in bed reading and watching football will be relaxing too, if they can't make it.
1 I lift up my eyes to the mountains—
where does my help come from?
2 My help comes from the LORD,
the Maker of heaven and earth.
3 He will not let your foot slip—
he who watches over you will not slumber; Psalm 121:1-3 NIV
Have a great day!
Until later....
Saturday, December 3, 2011
December 3, 2011 ~ Evening Post
Had a quiet day today. Did my laundry as expected, worked on entering some budget data into my laptop and enjoyed not going anywhere till my cousin Andy picked me up.
We went and he showed off his condo, nice place! Then joined Uncle Hal & Willie & Uncle Bill & Aunt Joan for pizza.
Nice quiet day with no treatment, Dr's or appointments. Still quick achy in the bones. Blaming the damp weather. Praying for a deep sleep tonight and looking forward to worshiping at the church across the street in the morning. May get back together with the relatives in the afternoon depending upon their schedules.
"Do you not know? Have you not heard? The LORD is the everlasting God, the Creator of the ends of the earth. He will not grow tired or weary, and His understanding no one can fathom. He gives strength to the weary, and young men stumble and fall; but those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." Isaiah 40: 28-31 NIV
Some people have been asking for my mailing address:
Cheryl Vradenburgh
% Cancer Treatment Centers of America
Western Regional Medical Center
14200 West Fillmore Street
Goodyear, AZ 85338
In addition, anyone who knows Uncle Hal's mailing address could always send things through him & Willie.
Until later....
We went and he showed off his condo, nice place! Then joined Uncle Hal & Willie & Uncle Bill & Aunt Joan for pizza.
Nice quiet day with no treatment, Dr's or appointments. Still quick achy in the bones. Blaming the damp weather. Praying for a deep sleep tonight and looking forward to worshiping at the church across the street in the morning. May get back together with the relatives in the afternoon depending upon their schedules.
"Do you not know? Have you not heard? The LORD is the everlasting God, the Creator of the ends of the earth. He will not grow tired or weary, and His understanding no one can fathom. He gives strength to the weary, and young men stumble and fall; but those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." Isaiah 40: 28-31 NIV
Some people have been asking for my mailing address:
Cheryl Vradenburgh
% Cancer Treatment Centers of America
Western Regional Medical Center
14200 West Fillmore Street
Goodyear, AZ 85338
In addition, anyone who knows Uncle Hal's mailing address could always send things through him & Willie.
Until later....
December 3, 2011 ~ Morning Post
Good Morning. I wish I was saying praises for a great nights sleep, but I didn't sleep so well last night. I went to bed around midnight hoping I could 'sleep-in' since it's a day off from treatment and laundry day for me. (Gonna see some local family too I think.)
Unfortunately, I only slept til 3-3:30 before the pain woke me. I took pain killers, not very strong obviously, and I drifted in and out until 7 a.m. when I gave up and got up. Took a hot bath that help a little, but it's not working like it used to. My hips are in agony and my right leg is on fire. Trying to decide what is really the cancer that traveled to the bones, what psychological and what's just old age and arthritis from a probable broken tailbone in 2003.
Well, that's enough whining for this morning. I've got things to do and people to see, once this mornings Advil kicks in.
Requests for prayers for a better day and night.....until later.....
Unfortunately, I only slept til 3-3:30 before the pain woke me. I took pain killers, not very strong obviously, and I drifted in and out until 7 a.m. when I gave up and got up. Took a hot bath that help a little, but it's not working like it used to. My hips are in agony and my right leg is on fire. Trying to decide what is really the cancer that traveled to the bones, what psychological and what's just old age and arthritis from a probable broken tailbone in 2003.
Well, that's enough whining for this morning. I've got things to do and people to see, once this mornings Advil kicks in.
Requests for prayers for a better day and night.....until later.....
Friday, December 2, 2011
December 2, 2011 ~ Afternoon post
Ya know, for a short day, it was rather long. I spent the morning calling schools, updating emergency contacts and telling the school to keep on my boys grades and attendance regardless of the situation.
In the midst of it all, I found out my sister-in-law, Elaine Gerdin, Chris' wife, (Howard's brother) passed away yesterday. She was only 55 years old. There were medical issues, so for some closer to home, it didn't come as big of a shock, but I for one, was stunned. There are two young ladies, a recent HS graduate & a 7th grader without their mother & a mourning husband without his wife. She will be missed by so many who loved her dearly.
As for my day, I went for my 10-15 minute brain radiation treatment, and then went across the hall for a leg CT scan, over 400 pictures, of my thigh, hip, knee etc. So they can fit me for a leg brace, to keep me still, for bone radiation. At least now I know why I have leg pain can't sleep, although I'm not thrilled with the diagnosis; at least it's not in my head...well I guess it is too, since it's in my brain...sorry have to add some humor to it all.
By this time, I'm achy all over and realized I had not had any pain meds since morning and it's now after 2:30 pm; I grab a lunch & dinner at the dining hall and take them back to my room. To find out my original check out date was today, and my keys didn't work...so down the elevator I go to re-key my key. I quickly ate my lunch, with my Advil, and then spent the rest of the afternoon reading on the heating pad. Really looking forward to this leg pain going away, they say the radiation and these steroids will help. I'm hoping.
Day off tomorrow, guess it's laundry and budget day. I brought all the bills and a whole slew of receipts to put into quicken. That will keep me busy.
Many Blessings to you all. Until next time......
In the midst of it all, I found out my sister-in-law, Elaine Gerdin, Chris' wife, (Howard's brother) passed away yesterday. She was only 55 years old. There were medical issues, so for some closer to home, it didn't come as big of a shock, but I for one, was stunned. There are two young ladies, a recent HS graduate & a 7th grader without their mother & a mourning husband without his wife. She will be missed by so many who loved her dearly.
As for my day, I went for my 10-15 minute brain radiation treatment, and then went across the hall for a leg CT scan, over 400 pictures, of my thigh, hip, knee etc. So they can fit me for a leg brace, to keep me still, for bone radiation. At least now I know why I have leg pain can't sleep, although I'm not thrilled with the diagnosis; at least it's not in my head...well I guess it is too, since it's in my brain...sorry have to add some humor to it all.
By this time, I'm achy all over and realized I had not had any pain meds since morning and it's now after 2:30 pm; I grab a lunch & dinner at the dining hall and take them back to my room. To find out my original check out date was today, and my keys didn't work...so down the elevator I go to re-key my key. I quickly ate my lunch, with my Advil, and then spent the rest of the afternoon reading on the heating pad. Really looking forward to this leg pain going away, they say the radiation and these steroids will help. I'm hoping.
Day off tomorrow, guess it's laundry and budget day. I brought all the bills and a whole slew of receipts to put into quicken. That will keep me busy.
Many Blessings to you all. Until next time......
December 2, 2011 ~ Morning Praise
I just wanted to post a short praise that I slept over 6 hours last night!!!
I turned out the light at 10:57 p.m., got comfy, and didn't see the clock again until 5:13 a.m. when my Sweet Dreams tea sent me to the potty. Now normally 6 hours sleep wouldn't make me ecstatic, but I was so energized, that even though I tried to go back to sleep, and months ago that wouldn't have been an issue at all. I rested quietly, actually composing this post, for just under an hour before deciding I needed to get up, read my face book comments and take my morning RX for radiation.
Thank you Jesus for an incredible nights sleep! (Even if it was through a sleeping pill, ibuprofen, and a heating pad, it worked!) And thank all of YOU for your prayers!
Have a great day everyone! My day is short, at the moment, I only have my radiation treatment at 1 p.m. for my only apt. They did request acupuncture, chiropractic and massage, so we'll see if any of that got scheduled. Like I mentioned before if the insurance denies theses expenses, it's complementary! I'll take it!
Until later....
I turned out the light at 10:57 p.m., got comfy, and didn't see the clock again until 5:13 a.m. when my Sweet Dreams tea sent me to the potty. Now normally 6 hours sleep wouldn't make me ecstatic, but I was so energized, that even though I tried to go back to sleep, and months ago that wouldn't have been an issue at all. I rested quietly, actually composing this post, for just under an hour before deciding I needed to get up, read my face book comments and take my morning RX for radiation.
Thank you Jesus for an incredible nights sleep! (Even if it was through a sleeping pill, ibuprofen, and a heating pad, it worked!) And thank all of YOU for your prayers!
Have a great day everyone! My day is short, at the moment, I only have my radiation treatment at 1 p.m. for my only apt. They did request acupuncture, chiropractic and massage, so we'll see if any of that got scheduled. Like I mentioned before if the insurance denies theses expenses, it's complementary! I'll take it!
Until later....
Thursday, December 1, 2011
December 1, 2011 Evening Post
Hello all. First of all I must thank each and every one of you for your prayers, comments and encouragement. Your support means the world to me. I have friends referring me and my blog to strangers who are referring me to strangers. Bless you all. We, as believers, are ALL part of God's family and brothers and sisters in Christ. What a small world we live in! Consider this a virtual hug to you all because I cannot possibly comment to each of you individually. (And a big HAPPY BIRTHDAY to my sis-in-law Valarie Eckhoff in New York!)
Today was a doozy! I didn't have time to be lonely even if I am here alone for a few days. I wasn't supposed to start my day til 11 a.m., and then only with a consult. Instead it started at 10:30 a.m. with a consult with the Radiological Oncologist. It's rapid growing and they want to get it NOW, at least the cancer that has traveled to the brain.
They moved so fast that this early apt fit me for a face mask molded to the shape of my face (so my head would not move) to have a radiation treatment on my brain at 4:00 p.m. today. My first of 10 M-F daily treatments. They also want to do radiation on my leg/knee, but I'm not sure of the timing yet.
Meanwhile I met with my Treatment Team to come up with a cancer Treatment Plan. Because the cancer has traveled the body they call it the three B's. Breasts, Brain & Bones. As much as I wanted to avoid chemotherapy, because the cancer moved beyond the primary location, I can NOT skip it. If it had been diagnosed sooner, maybe we could attempt other treatment. But with the aggressiveness and the various locations, Chemo, unfortunately, is the way to go. They are going to do 4 cycles, that consist of 1 day every 2-3 weeks depending upon my labs of Doxorubicin (aka Rubex) & Cyclophosphamide (aka Neosar).
Following that 12 weeks, they will do 4 cycles 1 day each every 2-3 weeks depending up on my labs of Paclitaxel (aka Onxal). I still have 3 packets of reading material on these drugs and all the 'potential side effects'. They will put in a port to administer these Chemo drugs via IV, but they will not put in the Port until my radiation treatment is complete.
Surgery is a probability, if not a given. But since the cancer traveled, it becomes the last procedure instead of the first. They want to kill the cancer that has traveled.
I will unfortunately miss Trevor's birthday on December 12 ( so you GJ people, please make him feel loved and special!) I'll be home for Christmas, but the timing is yet to be determined, so even Troy's birthday is iffy on Dec 22. With all this in mind, I'm so blessed Troy & Hailey followed with tradition and we put up our Christmas Tree the day after Thanksgiving like we do most years and I was there to enjoy it despite my distraction of other planning needs.
Thank you so much to the folks in GJ who have provided the kids with rides, food and support. I'm blessed to have you on our side!
As I end every post; God is in control. Jesus has a plan, even though they do not reflect our plans. I sure didn't intend to spend my December (AND MY BIRTHDAY!) in Arizona, (but it's sure warmer here than home, so it's a warm vacation from CO winter!)
"Keep your eyes on Jesus, Look full in HIS wonderful face, and the things on earth will grow strangely dim in the light of HIS glory and grace."
Until tomorrow....Many Blessings your way. Jesus is the reason for ALL my seasons, not just Christmas.
Today was a doozy! I didn't have time to be lonely even if I am here alone for a few days. I wasn't supposed to start my day til 11 a.m., and then only with a consult. Instead it started at 10:30 a.m. with a consult with the Radiological Oncologist. It's rapid growing and they want to get it NOW, at least the cancer that has traveled to the brain.
They moved so fast that this early apt fit me for a face mask molded to the shape of my face (so my head would not move) to have a radiation treatment on my brain at 4:00 p.m. today. My first of 10 M-F daily treatments. They also want to do radiation on my leg/knee, but I'm not sure of the timing yet.
Meanwhile I met with my Treatment Team to come up with a cancer Treatment Plan. Because the cancer has traveled the body they call it the three B's. Breasts, Brain & Bones. As much as I wanted to avoid chemotherapy, because the cancer moved beyond the primary location, I can NOT skip it. If it had been diagnosed sooner, maybe we could attempt other treatment. But with the aggressiveness and the various locations, Chemo, unfortunately, is the way to go. They are going to do 4 cycles, that consist of 1 day every 2-3 weeks depending upon my labs of Doxorubicin (aka Rubex) & Cyclophosphamide (aka Neosar).
Following that 12 weeks, they will do 4 cycles 1 day each every 2-3 weeks depending up on my labs of Paclitaxel (aka Onxal). I still have 3 packets of reading material on these drugs and all the 'potential side effects'. They will put in a port to administer these Chemo drugs via IV, but they will not put in the Port until my radiation treatment is complete.
Surgery is a probability, if not a given. But since the cancer traveled, it becomes the last procedure instead of the first. They want to kill the cancer that has traveled.
I will unfortunately miss Trevor's birthday on December 12 ( so you GJ people, please make him feel loved and special!) I'll be home for Christmas, but the timing is yet to be determined, so even Troy's birthday is iffy on Dec 22. With all this in mind, I'm so blessed Troy & Hailey followed with tradition and we put up our Christmas Tree the day after Thanksgiving like we do most years and I was there to enjoy it despite my distraction of other planning needs.
Thank you so much to the folks in GJ who have provided the kids with rides, food and support. I'm blessed to have you on our side!
As I end every post; God is in control. Jesus has a plan, even though they do not reflect our plans. I sure didn't intend to spend my December (AND MY BIRTHDAY!) in Arizona, (but it's sure warmer here than home, so it's a warm vacation from CO winter!)
"Keep your eyes on Jesus, Look full in HIS wonderful face, and the things on earth will grow strangely dim in the light of HIS glory and grace."
Until tomorrow....Many Blessings your way. Jesus is the reason for ALL my seasons, not just Christmas.
December 1, 2011 Early Morning
Praise the Lord!! I just couldn't wait to share my praise! I slept for several hours last night!! The Dr gave me a sleeping pill that I took and though I didn't sleep straight through, had to pee due to hot Niteworks & hot Sleepy Time tea at bed, I DID manage to get back to sleep without much tossing and turning.
My day does not start at the facility until 11:00 a.m. with a surgical consult and 12:45 p.m. with a slew of team member treatment plan consults.
Then it's decision making time.
Please pray for my kids: I have choices to make; Birthdays to attend, Christmas to attend, and do I even attempt to work peak of Tax Season. These are not decisions to make lightly.
But as I've said in almost every post; God is in control. He loves me and has a plan for me and a great hope for my future.
God bless you all, and until next time: Jesus loves YOU!
My day does not start at the facility until 11:00 a.m. with a surgical consult and 12:45 p.m. with a slew of team member treatment plan consults.
Then it's decision making time.
Please pray for my kids: I have choices to make; Birthdays to attend, Christmas to attend, and do I even attempt to work peak of Tax Season. These are not decisions to make lightly.
But as I've said in almost every post; God is in control. He loves me and has a plan for me and a great hope for my future.
God bless you all, and until next time: Jesus loves YOU!
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